The “Guide of Guides” Series for Knowledge Translation

This blog post was written by Anneliese Poetz, KT Manager for KBHN. It was originally published as a guest post on the ResearchImpact blog (Source: The “Guide of Guides” Series for Knowledge Translation) it is reposted here with permission.

Kids Brain Health Network (formerly NeuroDevNet) is a Network of Centres of Excellence funded by the Federal government of Canada. There are three discovery programs focused on the early diagnosis and treatment of: Fetal Alcohol Spectrum Disorder, Autism Spectrum Disorder, and Cerebral Palsy. Three Cores serve the researchers and trainees within the Network as well as the other Cores: Neuroethics, Neuroinformatics, and Knowledge Translation (KT). The KT Core is hosted by York University’s award winning Knowledge Mobilization (KMb) Unit and provides 7 services within the Network:

1- Knowledge Brokering
2- Support for KT Events
3- Support for KT Products
4- KT Capacity Building
5- Evaluating KT
6- Support KT Planning
7- Stakeholder Engagement

A couple of years ago, one of our researchers asked us for guidance for using social media for KT. We realized while searching for what was ‘already out there’ that there are a lot of guides for social media, but not all of them are targeted towards use by researchers. In collaboration with York University’s KMb Unit, we produced our first “Guide of Guides” that is a compilation of carefully selected and vetted guides for social media that are relevant. The “Guide of Guides” format resembles an annotated bibliography, where the reference information is provided for each guide along with a summary paragraph about the tool, how it can be used and why you may wish to use it. The “Social Media Guide of Guides” became the start of a series. This post serves as a “guide” to the “Guide of Guides” series.


Soon after, we produced the “KT Planning Guide of Guides”.

We were doing a search for existing KT planning guides because another project we were working on was to provide KT planning support for 4 key projects within the Network and we wanted to see if there was a tool out there that we could use. What we ended up doing was creating our own, that was specific to our own needs (the Hybrid KT Planning and Project Management tool). However, we had conducted an exhaustive search of existing KT Planning tools so we reviewed and vetted them for quality and relevance, and created a similar “Guide of Guides” for KT Planning.

We received several requests from researchers for support and resources for creating infographics. After searching for existing guides, we realized that surprisingly there weren’t any guides for researchers about infographics, only blog posts. So, we vetted the blog posts, searched the literature and wrote a comprehensive evidence-based guide, followed by an annotated list of what we deemed were the best blog posts on infographics. Some blog posts pointed to examples of infographics, while others explained step by step how to create an infographic and what tools were available (usually free, online) for creating your own. While the content wasn’t really a “Guide of Guides” per se, we titled this product the “Infographic Guide of Guides”. We were fortunate to have one project team pilot test a draft of this guide and provide feedback before it was finalized and posted. This is the first guide that included an appendix with form-fillable fields to help research teams work through the process of creating an infographic.

Finally, we produced a “Stakeholder Engagement Guide of Guides”. There are many guides for doing stakeholder engagement, and it is becoming more important for KBHN to do stakeholder engagement in a more formalized way. After searching, reviewing, and vetting guides available online, we created a similarly formatted “Guide of Guides” for stakeholder engagement that also included a form-fillable appendix to help facilitate planning. Since there are many different reasons (goals/objectives) for engaging with stakeholders and many different formats for doing so, we created a summary table at the beginning of the guide that separates the types of engagement into three tables: mostly sharing information with stakeholders, sharing and listening, and mostly listening. The list of specific formats within each category was visually coded so that the user can easily find the corresponding guide for detailed information.

The KT Core may produce one more “Guide of Guides” on evaluation methods for KT.

What do the acronyms TEDx, ASD and iKT have in common?

TedX

Source: What do the acronyms TEDx, ASD and iKT have in common?

This week’s guest post comes from the ASD Mental Health site, Dr. Jonathan Weiss’ Blog. It was first published on April 13, 2016 and is reposted here with permission. 

by Drs. Jonathan Lai & Jonathan Weiss

On Saturday May 28th, the Chair in ASD Treatment and Care Research[1] will be hosting Spectrum, a TEDxYorkUSalon focussing on concerns relevant to transition-age youth and to adults with Autism Spectrum Disorder.

When the Chair was first launched, we asked stakeholders (e.g. people with ASD, clinicians, family members, policymakers, and researchers) how they wanted to be engaged with, both in terms of what we’re doing, and what was going on in the Canadian field of autism research. The message was clear: we need more than one approach, for multiple types of audiences, including those we already knew as well as those in the autism community we had not yet reached. So how best to develop a dynamic, accessible, and efficient way of exchanging knowledge about autism across so many different perspectives? This is where TEDx comes in.

Our upcoming event is part of our strategy of innovative knowledge mobilization and stakeholder engagement. Since knowledge translation is a learning process among stakeholders with different perspectives and expertise, we have involved people with ASD, parents, researchers, educators, policy makers, and service providers as presenters. The presenters will give short 8-minute talks which will be placed online following the event and made freely accessible to the public.

The well-known and appreciated TED format is all about developing, refining, and sharing ideas in an entertaining way, both for those present in the physical audience, as well as those in a virtual audience who can access the talks worldwide. It’s a format, and a brand, that has tremendous recognition and a demonstrated ability to break down complex knowledge into a format that can appeal to a wide range of audiences: it’s open to everyone. Since our goal is share the knowledge that’s been generated in the Canadian autism community openly, we are creating broadly appealing content that will be available through the TEDx in-person and online platforms. We believe it will be an effective method to bring multiple perspectives together and listen to one another.

How can you plan your own TEDx event?

tedx notepadA TEDx event is not an easy thing to coordinate or one that can be developed in only a few months time. You will need dedicated personnel; we have one person (JL) who is dedicated to coordinating all aspects of the day over a 12 month period, for about one day a week.  Our timeline was as follows, based on our capacity:

Timeline (# months in advance of event date) Task to be completed
10 months Read TEDx guidelines, craft vision and goals
9 months Find a venue and date, have an budget
8 months Curate speakers, identify sponsors and partners
7 months Construct a program (running order)
6 months Form your teams (A/V, volunteers)
5 months Coach speakers (monthly emails, one-on-one sessions)
5 months Build a website (marketing)
2 month Promote to your audience (marketing)

First, craft your vision and goals (10 months ahead of time). It’s important to think through and articulate your vision (how would you define success?) and then identify how you can evaluate whether and to what extent you achieved your goals. Our vision and goals were to: 1) make topics of ASD research accessible, 2) build enthusiasm about research and 3) expand reach globally to people living with ASD, students and service providers. This shaped the types of questions we asked on our evaluation forms. For example, we hope that the TEDxYorkUSalon event will lead to greater excitement, optimism and familiarity about Canadian research in ASD and with regard to how people view ASD more generally. We ask questions about these topics in an optional questionnaire when they register, and will do so again after the event, to measure individual change.

tedx organizer's manualAs you begin this goal setting and visioning process, read the guidelines to know what goals are feasible. The TEDx Organizer’s Manual had many helpful tips and a step-by-step guide on how to organize an event like this properly. Since this is our first time, we had a steep learning curve. There are various guidelines for the different types of events. TEDx licenses are given to people based on location (e.g. TEDxNewYork, TEDxToyko, TEDxUniversityofLeeds, TEDxYorkU) and there are different guidelines for each event type with respect to: the number of attendees, types of sponsorships, branding of the event etc. We decided to run a Salon event under TEDxYorkU – a smaller event run under approved TEDx license holders because it allows us to explore a more specific topic rather than a general theme. Your vision and goals must align with the type of event – as that determines the structure that enables what you can do.

Ultimately it’s crucial to stick with TED’s strictly prescribed format, which can be difficult for us researchers who are used to having full control over the design and execution of our own events. By choosing to go with the TEDx format, it meant letting go of some of that control. We learned that we had to be flexible – working with a brand with licensing guidelines, we had to adapt each time we were constrained by requirements. For instance, we had to ensure the number of presenters and attendees were approved and that sponsors were not related / perceived to influence/bias talk content. Further, we had to figure out how to brand the event properly – the Event webpage couldn’t be associated with our research brand (Chair website, ASDMentalHealth Blog, or even York University). We would encourage on-going communication within your team and those involved so everyone is on the same page.

Tedx audienceLooking for an appropriate venue, we kept in mind not only costs but accessibility for families – as well as technical requirements for our event (e.g. lighting, staging). With the depth and breadth of enthusiastic, passionate Canadian researchers, advocates and parents available, we had no difficulty finding individuals who could fit the TED requirements. Our speakers are up for the challenge, currently being coached to chiselling their passion, knowledge and experience into a tight 8 minutes. Similarly, finding partners and sponsors for the event was not a big challenge. Many organizations that shared the same vision of KT and gladly supported us, including the Faculty of Health at York University, NeuroDevNet, Kerry’s Place, Geneva Centre for Autism, Sinneave Family Foundation, and the Ontario Brain Institute.

We worked with an expert at York University who has successfully run TEDxYorkU over the last few years (Thanks Ross!), building on his success and his wisdom about what’s required in terms of advising speakers, creating an exciting schedule, space and technological issues. NeuroDevNet’s KT Core will be in attendance to engage with stakeholders and capture this engagement on video. Video taping of individual speakers is also being arranged through York University’s Learning Technology Services video team, who have had experience working with TEDxYorkU in the past and were familiar with TEDx guidelines.

Overall, familiarity with TEDx guidelines, building a team (e.g. with sponsors, speakers, technical support) and having consistent communication with those involved within is important to create a successful event. The exchange of ideas and having different perspectives (not just researchers) is, after all, the point of doing iKT!

For more information about this event, and how to register, please visit: http://www.tedxyorkusalon.org/ or contact Dr. Jonathan Weiss (jonweiss@yorku.ca) or Dr. Jonathan Lai (jonlai@yorku.ca) for details.


[1] The Chair in Autism Spectrum Disorder Treatment and Care Research is funded by the Canadian Institutes of Health Research in partnership with Autism Speaks Canada, the Canadian Autism Spectrum Disorders Alliance, Health Canada, NeuroDevNet and the Sinneave Family Foundation. Additional support from York University and ORION’s O3 Collaboration.

Clear Language That Packs a KT Punch

This week’s blog is written by Stacie Ross, KT Assistant for the KT Core of NeuroDevNet.

NeuroDevNet’s KT Core has been producing our ResearchSnapshot clear language research summaries since 2014. We have 39 ResearchSnapshots posted on the NeuroDevNet site neurodevnet.ca. Responding to feedback from our researchers, we revised our process for clear language writing to take advantage of the expertise of our trainees who are close to the research being summarized.

How We Made a Change

Listening to our researchers allowed us to implement a new process that streamlined and simplified the writing process while at the same time created a ResearchSnapshot that more accurately reflected the original research being summarized. The result will be a more succinct and easy-to-understand review, and trainee writers who have developed clear writing as a new skill and produced clear language research summaries can place these non-academic publications on their CVs. Trainees are encouraged to review our process and think about whether they would like to work with the KT Core, to create a clear language summary of either their own peer-reviewed publication or one from their supervisor.

Revised Process Flow Chart for ResearchSnapshots

Revised Process Created Through Trainee Feedback

The detailed process was designed through a few meetings, incorporating feedback, and testing logistics. The umbrella process without all of the details is really four simple steps for us.

  1. Create an instructional webinar on how to write clear language summaries.
  2. Invite our NeuroDevNet trainees to the webinar/to view it online afterwards.
  3. Put out a network-wide call for papers.
  4. Send regular reminders to the network to submit papers.

On August 14th, 2015, we held a webinar to inform NeuroDevNet trainees about clear language summaries and how to write a ResearchSnapshot. Michael Johnny, Manager of Knowledge Mobilization at York University and Anneliese Poetz, Manager, Knowledge Translation (KT Core) outlined just how important design and clear language are for the reader to be able to understand the science behind the ResearchSnapshot. The webinar was a success with great comments received through an online survey afterwards.

“I liked that I came into it knowing nothing about the topic and not being really sure what to expect, but found that I now understand the importance and function of research snapshots.”

“The webinar was a great opportunity to learn about [NeuroDevNet] and clear language writing.”

We also received some tips on how to improve our next webinar. One example,

“I would have liked to see an example of a good research snapshot and a research snapshot that is not meeting criteria. That would have allowed us to have a clearer understanding of what to strive for and what to avoid.”

We will seek to address this valuable feedback in future training sessions.

As I am new to NeuroDevNet, I enjoyed being a part of the webinar and getting to know the process and clear writing expectations. View the webinar to learn about the value of clear language. I am looking forward to creating many more ResearchSnapshots and contributing clear language summaries that can speak to diverse stakeholders and provide them with the information they need to make decisions, to be informed, to provide care, to access more information.

Dr. Jarred Garfinkle’s ResearchSnapshot, “How Much of Cerebral Palsy is Caused by Genetics,” will be a clear language summary of Dr. Maryam Oskoui’s publication, “Clinically relevant copy number variations detected in cerebral palsy.” This will be my first ResearchSnapshot that I have coordinated. The draft is in, it’s terrific, and the process has been smooth and simple thus far. With the support of the online webinar, the existing ResearchSnapshots for reference, the knowledge mobilization writing guide, and myself and the entire KT Core, bringing evidence into practice is proving to be efficient and effective and exciting!

If you are a NeuroDevNet researcher or trainee and have a peer-reviewed publication you’d like to translate into a ResearchSnapshot clear language research summary, contact the KT Core.

Embedded KT Support within Project Teams – working the “Co-Produced Pathway to Impact” for NeuroDevNet NCE

by Anneliese Poetz, KT Manager, NeuroDevNet

In a recent blog post we told you about the development of a “Hybrid” tool that combines aspects of KT Planning with principles of project management. While this tool is appropriate for use by any researcher or trainee, we primarily developed it for use by NeuroDevNet’s 4 High Impact Projects (HIPs). The HIPs were chosen from existing NeuroDevNet research projects after the Research Management Committee directed that NeuroDevNet focus on 4-5 projects that had the “highest potential for creating impacts on diagnostics, interventions and services” during Cycle II. The idea is that by working closely with a small number of projects we can maximize the chances we will have specific examples of how we have achieved impact during Cycle II, to best position NeuroDevNet for Cycle III renewal. The process took several months, and began with a call to PIs to ask them to select projects within their programs that would fit the criteria to become a HIP. The KT Core made recommendations and the final High Impact Projects were approved by Dan Goldowitz, Scientific Director for NeuroDevNet.

Social ABCs High Impact Project Team members meeting with KT Core.

Social ABCs (ASD) High Impact Project Team members meeting with KT Core.

We provided the 4 HIPs with the Hybrid tool to use for drafting their KT plans for the next 5 years (Cycle II for NeuroDevNet). Over the course of this summer, David Phipps (KT Lead, NeuroDevNet) and I met with 3 out of the 4 HIP project teams for 1.5-2 days in-person to review their KT Plan with them and collaboratively refine it as needed.

This is exciting for NeuroDevNet’s KT Core, because it is the first time there have been KT practitioners (KT supports within an organization) embedded within project teams in this way. The information gathered within the Hybrid KT Planning tool will provide the information needed to manage the timelines and milestones for these KT plans during Cycle II. The aim is to work with project teams so that by the time we write our application for Cycle III funding we will have concrete examples of impact.

Screening & Intervention (FASD) High Impact Project team members working on KT Plan with NeuroDevNet's KT Core

Screening & Intervention (FASD) High Impact Project team members working on KT Plan with NeuroDevNet’s KT Core

The first meeting we attended was for a project in the ASD program called Social ABCs, the next was for the FASD program’s Screening & Intervention project, and finally the CP Program’s Exergame project. The first two were more focused on KT activities toward achieving uptake and implementation of their respective interventions into programs that serve children and families affected by ASD and/or FASD while the latter is more focused on commercialization of the Exergame technology and games for home use. In all meetings, the project team members (researchers, research support staff, practitioners/partners etc.) were fully engaged and commented afterwards about how useful this process has been for them: both the tool we provided and the in-person meetings.

As part of the process we are listening to project team members for their feedback on the Hybrid KT planning tool in order to inform future iterations. After the in-person meetings the KT Core continues to work with the HIPs to further refine and finalize their KT plan, and also to determine the best ways in which we can integrate with project teams and support their KT goals for Cycle II. We view this as an iterative process, and we will review these KT plans on an annual basis with follow up in-person meetings with project teams.

These HIPs are pilot projects – the KT Core remains available to help all NeuroDevNet projects with KT Planning and other KT services.

If you are a NeuroDevNet researcher or trainee and would like help with your KT plan for a grant application or for your already-funded NeuroDevNet project(s) contact the KT Core to find out how we can help.

5 tips for writing the KT section of your research grant application

grant writing pen page

by Anneliese Poetz, KT Manager, NeuroDevNet

1. Don’t over-cite KT literature – cite some relevant KT literature, and describe one framework but choose one that makes sense for your research-to-impact goals. But resist the urge to over-cite the KT literature in place of describing your KT plan. Dazzling the funder with your knowledge about what frameworks are out there is not going to impress them. Instead, tell them what you are going to do to help maximize the chances that people will use your research findings.

2. Write your research proposal first – Some researchers try to write their KT plan in parallel with their research proposal. However, your KT plan depends on what you are going to do for your research. For example, the audiences you choose and the strategies you use to reach them depend on what your project is about and what you hope will happen with those findings. When you contact the KT Core for help, send us your full proposal, along with the link to the application requirements to ensure we have the information we need to provide you with the best service.

Scientist Money beaker

3. Budget appropriately for your KT activities – you can have a most impressive KT plan, but you also need to allocate an appropriate portion of your budget to be able to follow through. If you have no idea what certain activities may cost (or how much time they will take to do) contact the KT Core.

4. Think beyond dissemination – it is common for researchers to primarily think about publications and conference presentations as KT. While they are end-of-grant KT, they are not enough to impress a funder. Tell them about how you will engage with your stakeholders early on and throughout the project (integrated knowledge translation) and describe how you believe this will maximize the chances that your research will be taken up into practice, implemented, and eventually achieve impact.

5. Get creative – it is okay to propose to do KT activities that have been done before, such as producing clear language summaries, infographics and videos. But what else can you do that will make sense for your project? For example, can you hold a community event? Can you use an arts-based approach such as a play or a hands-on community workshop? Get creative! Brainstorm with your research team to think about how (and how many different ways) you can get the main messages of your research to your target audience(s).

If you would like help with the KT planning section of your research grant application, contact the KT Core to see how we can help.

What happens when KT Planning and Project Management worlds collide?

by Anneliese Poetz, KT Manager, NeuroDevNet

PinkYellowDropsInWaterThe answer: you get a hybrid tool for researchers to use for developing a KT plan with activities that are linked with the elements of a project charter.

The dictionary defines “hybrid” as: “a thing made by combining two different elements; a mixture.”

NeuroDevNet’s KT Core recently finalized the creation of a new innovative tool for combining KT Planning with principles from the field of project management. Indeed, it is a ‘mixture’ of elements from both. Someone asked me recently: why did you create the Hybrid KT Planning and Project Management tool (short form: ‘the Hybrid tool’). NeuroDevNet NCE was renewed for another 5 years of funding (Cycle II), and we needed a tool that could be used for any project, that would help us manage KT plans for projects in Cycle II and help keep them on track. We believe that doing this will position us well for applying for Cycle III.

Another person asked me, what was your process for creating the Hybrid tool?

1) Identified a need for a custom tool to facilitate KT Planning for NeuroDevNet’s Cycle II projects after conducting a review of existing KT Planning guides and testing them internally to determine their usefulness

2) Based on the review of KT Planning Guides, we chose 2 key tools to build upon: 1) Melanie Barwick’s (Sick Kids) 13-step Scientist Knowledge Translation Plan template for its comprehensiveness, and 2) Purmina Sundar’s (Ontario Centre of Excellence for Child and Youth Mental Health) form-fillable KMb Toolkit for its ease of use and content, as well as 6 different examples of project charters provided by colleagues

3) Identified areas of overlap (e.g. people involved, identification of activities/deliverables) and linked these with corresponding sections of project charters. I literally pulled these resources apart and put them back together in a different arrangement

4) Composed original text for the purpose of providing additional information (e.g. tips for stakeholder engagement as part of an iKT strategy) and tables that mirror those required for NCE progress reporting

5) Identified places in the document where information would have to be duplicated, and noted where .pdf form-fillable document should auto-populate the information to make it easier for project teams to work with

6) Once the word document was drafted, it was shared with Principal Investigators, NeuroDevNet Headquarters, the KT Core’s KT Steering Committee, and the KT Core’s McMaster and McGill sites for feedback

7) Finalized content in response to feedback and sent to graphic designer who created the working form-fillable version

I recently presented at a KT Conference, and explained some of the requirements of our researchers and how we addressed them before finalizing the Hybrid tool. In the presentation below, you can see the requirements we gathered (from stakeholders listed in step 5 above) and how we addressed them. The presentation ends with a few points as to why we think this tool is important:

We wish to thank Melanie Barwick (Sick Kids) and Purnima Sundar (OCE CYMH) for giving us permission to use content from their KT Planning tools.

The Hybrid tool has been peer-reviewed, and tested for functionality. It is not available online yet, but we do plan to make it publicly available.

If you are a NeuroDevNet researcher or trainee and would like to use the Hybrid tool for your KT Planning, contact the KT Core.